Last Friday, Alex was taken to A and E after having a seizure in our study. She then had 2 more seizures in the next 4 hours at hospital. Alex had been feeling some anxiety in the week leading up to this, but nothing that would suggest that she had a serious medical complaint. She has since been in Derriford hospital and will probably be there for the next 2 weeks as she is treated with both anti-viral and anti-bacterial drugs.
Alex is recovering and feeling ok within herself and the signs are good for her making a full recovery. She is alert, able to make conversation and she started to wander around yesterday.
On the downside, she is struggling with her memory working, she still has some residual problems with feelings of anxiety, she is bored and she can't see Rocky for risk of passing infection in the hospital. All of the downsides seemed to be linked with the encephalitis.
Ok, so here is the science bit, you may be like me and not know what encephalitis is, well you can read more about it by going here. But here is the potted version. Encephalitis works to inflame your brain, when the brain inflames, it sends crazy electrical signals around itself and then you have seizures.
The doctors believe that Alex has herpes simplex encephalitis, which is a virus that looks like the picture opposite. Although a team of six neurologists all believe this is what Alex has, they cannot prove this conclusively because they would have to do a lumbar puncture to do that and they can't because the shape of Alex's brain suggests there might be complications. So that is why she is being treated for anti-bacterials as well, belt and braces.
Now, this virus likes to attack the
temporal lobes of the brain, which you can see helpfully in the diagram opposite. The temporal lobes are useful for many things, but they have a big part to play in how your memory and emotions work, which is why Alex's memory and feelings aren't doing so well. She should make a full recovery, but there is likely to be a bit of scarring on the brain. What effect that might have, we are not sure. At the moment, a lot of what we are dealing with is wait and see.
temporal lobes of the brain, which you can see helpfully in the diagram opposite. The temporal lobes are useful for many things, but they have a big part to play in how your memory and emotions work, which is why Alex's memory and feelings aren't doing so well. She should make a full recovery, but there is likely to be a bit of scarring on the brain. What effect that might have, we are not sure. At the moment, a lot of what we are dealing with is wait and see.We are coping pretty well with all of this. My family have been brilliant and so have Alex's. Somewhat ironically, we booked in this week for the bathroom to be re-decorated after waiting 2 and a half years, but that's going well too. It should all be sorted by the time alex comes home. Rocky has taken to being fed by bottle and I am getting to see Alex for about 3 hours a day. Life isn't very normal at the moment, but we're doing alright. Thankyou to anyone who has prayed for us. We really appreciate it.
Naturally, we are going to have to postpone the dedication until later in the year.
Ok, my brain is hurting a bit now, and Rocky is going to need a feed in a minute. God bless.
Simon

